Born with a Bomb Suddenly Blind from Leber's Hereditary Optic Neuropathy (English Edition) [Format Kindle]
Author: Valerie Byrne Rudisill | Language: English | ISBN: B00AO9LRCW | Format: PDF, EPUB
Born with a Bomb Suddenly Blind from Leber's Hereditary Optic Neuropathy
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Présentation de l'éditeur
Blindness
A world that both horrifies and fascinates.
Imagine you find your eyes aren't working quite right one day. You think you need glasses. Instead, over the next few months, while you lose your vision daily, you discover it is caused by a defect in your mitochondrial DNA. It is hereditary. There is no cure and no way to stop your vision loss. There is no way to predict how much sight you will lose. You could be anywhere from visually impaired to total darkness. You are the first one in your family to be effected so you had no idea this could happen. Typically you are a male at your prime -late teens to early 20's. But, you can be any age or any sex. In this collaboration you will meet a skydiver, lawyer, athlete, sailor, world golf champion, musicians, one who defied death 3 times, people desperate to try anything for a cure, and potentially the first and only person in the world ever cured. There is humor, despair, joy, and the spirit of human nature conquering extreme adversity. Even you may have been born with this genetic bomb - so Welcome to our World.
A world that both horrifies and fascinates.
Imagine you find your eyes aren't working quite right one day. You think you need glasses. Instead, over the next few months, while you lose your vision daily, you discover it is caused by a defect in your mitochondrial DNA. It is hereditary. There is no cure and no way to stop your vision loss. There is no way to predict how much sight you will lose. You could be anywhere from visually impaired to total darkness. You are the first one in your family to be effected so you had no idea this could happen. Typically you are a male at your prime -late teens to early 20's. But, you can be any age or any sex. In this collaboration you will meet a skydiver, lawyer, athlete, sailor, world golf champion, musicians, one who defied death 3 times, people desperate to try anything for a cure, and potentially the first and only person in the world ever cured. There is humor, despair, joy, and the spirit of human nature conquering extreme adversity. Even you may have been born with this genetic bomb - so Welcome to our World.
Books with free ebook downloads available Born with a Bomb Suddenly Blind from Leber's Hereditary Optic Neuropathy
Détails sur le produit
- Format : Format Kindle
- Taille du fichier : 1156 KB
- Nombre de pages de l'édition imprimée : 237 pages
- Pagination - ISBN de l'édition imprimée de référence : 1477295852
- Utilisation simultanée de l'appareil : Illimité
- Editeur : AuthorHouse (13 décembre 2012)
- Vendu par : Amazon Media EU S.à r.l.
- Langue : Anglais
- ASIN: B00AO9LRCW
- Synthèse vocale : Activée
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Most people don't know what to expect when they lose their vision, especially when it's sudden and unexpected. While each person has a unique and personal experience, there are common issues and concerns encountered by families whose lives are impacted by LHON. Since sudden vision loss is rare, it's hard to find others who've been through the experience, and it's easy to feel alone. This important book provides a collection of true stories, each honest and powerful, that helps each member of the LHON community understand their own experience within a broader context.Par LHONpoince
- Publié sur Amazon.com
Each chapter is a different person telling their story. I loved it! Our son is affected by this and it helps to read about others journeys through their vision loss and how it compares to what we went through as a family and what my son went through, to know that he is not alone.Par Michele Batten
- Publié sur Amazon.com
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