But You Look So Good...

But You Look So Good...: Stories by Carcinoid Cancer Survivors (English Edition) [Format Kindle]

Author: Maria J. Gonzalez | Language: English | ISBN: B00D41E2K6 | Format: PDF, EPUB

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But You Look So Good...: Stories by Carcinoid Cancer Survivors
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Présentation de l'éditeur

But You Look So Good - Stories from Carcinoid Cancer Survivors and the basics of Neuroendocrine cancers.

This book shares the intimate stories of those living with a poorly understood neuroendocrine cancer and the time it takes to find a correct diagnosis; sometimes years! The book demonstrates how those afflicted with this cancer cope with the myriad symptoms of this “great masquerader” cancer.

Supported by loved ones, the valiant struggles to obtain a correct diagnosis and effective treatments will give the reader a dramatic first-hand look into how our healthcare system often fails to serve each of us, regardless of illness.

More importantly, the stories show the reader how those with this cancer cope. The book also offers information on the various types of this cancer, tests, markers, and scans relevant to NE cancer, as well as tips on how to manage symptoms, side effects of medications, complimentary alternative medicine, quality of life issues, nutrition, and coping. It offers hope, strength, and inspiration to those with this cancer, as well as to their care-givers and all involved with them.

Biographie de l'auteur

The author has had a rewarding career in nursing and medicine, including internal (multi-specialty clinics), primary care, and emergency medicine. She has worked in hospice and home care, and currently volunteers in a free clinic serving the uninsured and underserved. Previous publications include: How to Render Primary Care to Patients With Different Cultural Beliefs and Practices, a chapter on Home Care For Patients With Aids, a paper on herbs and other alternative therapies, poetry, and haiku. At the time of these writings, her name was Mary Jo Swafford. She is a neuroendocrine cancer survivor, is retired, studying to re-certify as an MD, and lives with her partner and two cats in No. California.

Books with free ebook downloads available But You Look So Good...: Stories by Carcinoid Cancer Survivors

Détails sur le produit

• Format : Format Kindle
• Taille du fichier : 718 KB
• Nombre de pages de l'édition imprimée : 258 pages
• Utilisation simultanée de l'appareil : Illimité
• Editeur : iUniverse (23 mai 2013)
• Vendu par : Amazon Media EU S.à r.l.
  
• Langue : Anglais
• ASIN: B00D41E2K6
• Synthèse vocale : Activée
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Disclaimer: I contributed a story to this collection and also helped in editing (typos are mine!).

For a patient and their loved ones to keep current with medical science, especially in regards to a rare disease, is not easy. Also not easy: Building a medical team that is both open to acquiring new knowledge as well as being compassionate in the face of their own ignorance with regard to neuroendocrine cancer, the disease to which Steve Jobs succumbed.

While this book has a 70-page primer that gives the patient an overview of many current approaches to diagnosing, treating and monitoring a cancer that is a master of disguise in its disturbing symptoms, it also offers more valuable gifts: resources to empower the reader to explore further, keep current, and above all, to feel less isolated by presenting moving stories of those generous enough to share their experience of living with this "cancer-in-slow-motion." Their struggles, hope and strength are real treasures for men and women living with this cancer.

In the face of an over-extended, over-specialized medical bureaucracy, the book also offers medical providers with valuable insights into what works and what needs changing with respect to frustrating patient presentations, a disease that demands the utmost in up-to-date approaches, and a paramount need to use the team approach. The professional reader can comprehend that, if ever a disease demanded setting ego aside and embracing a collaborative approach, NE cancer is the poster child for that disease!

While I'm too close to this book to judge whether it's is a "page-turner", I can speak with the confidence of a RN living with someone with this cancer: This volume will prove to be of immense worth, to newly diagnosed patients, to those who have lived with NE cancer for some time, and to their caregivers, both lay and professional. The reader will see how lives have been lost due to medical ignorance coupled with arrogance. Hopefully this book will go a long way to remedying such lapses in the delivery of effective care and be a useful tool to living with NE cancer and its many challenging symptoms.

Par William Manewal
- Publié sur Amazon.com

This book is well thought out. The author has packed a large amount of medical information in the front part of the book. Information I wish had been on-line when I was first diagnosed with Carcinoid/NETs in 1995.

The second part of the book contains stories from Carcinoid/NET survivors, or as I like to say winner. These stories show how very differet we are except for having Carcinoid Cancer. Each person has to decide which doctors to have on their team; and how to handle the emotional side of cancer, not just the physical side. These are inspiring stories and I recommend this book.

Par Susan L. Anderson
- Publié sur Amazon.com

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